Cinema Blend (Free subscription) | 24/09/2008
Nice. This is like House , only not as misanthropic and not as complicated with the medical jargon and rare diseases. I'm down so far. I give it a B+ for this week. There is huge room for improvement, but it was a strong start.
Seth's blog (Free subscription) | 18/09/2008
How much disease do genes cause? Sure, they cause some rare diseases that affect very few people but what about major health problems, such as depression, that affect everyone? The notion that genes make a big difference to human health — that some people are healthy and others sick because of genetic differences — was [...]
Law Blog - WSJ.com (Free subscription) | 29/07/2008
After Internet millionaire Jay Tenenbaum was diagnosed with melanoma, he used his Web savvy to create CollabRx, a company that helps patients and researchers work more effectively to find treatments for rare diseases. The idea taps into the recent phenomenon of patient-supported research.
TomographyBlog.com (Free subscription) | 21/07/2008
I would like to provide yet another little space on this blog for something that is not related to either Radiology nor Nuclear Medicine, but is something that everyone should be aware of : rare diseases. They are defined as rare because only 4-5 people in 10,000 are affected by either one of them, and [...]
atHome Top Story (Free subscription) | 03/07/2008
Oshawa pharmacist Rajni Kassett is sending a few of his customers, struggling with relatively rare diseases, to a new website. He's telling them they just might find the help and support there they sometimes feel they're missing.
Living on the frontlines (Free subscription) | 02/06/2008
I just wanted to say congradulations to Dr. Gahl! He was mentioned in Newsweek! He's taking on trying to diagnose undiagnosed diseases. I expect it will be a project that is completely overwhelming - just given my experience wandering around the world of rare diseases and encountering so many people that don't have a diagnosis. There is a comment section at the end of the story on the Newsweek site...
Denver Post (Free subscription) | 20/05/2008
They're the cold cases of medicine, patients with diseases so rare and mysterious that they've eluded diagnosis for years.
Seattle Times (Free subscription) | 19/05/2008
They're the cold cases of medicine, patients with diseases so rare and mysterious that they've eluded diagnosis for years.
CBC.ca (Free subscription) | 13/05/2008
A group that represents Canadians with rare disorders is calling for a national policy to help pay for their astronomical medical costs.
CollegeHumor Updates (Free subscription) | 18/03/2008
Less than 2 percent of our readers die from incredibly rare diseases. Coincidence? Politically Correct Dyslexia -"Ask that black guy for directions" -"Excuse me, but I believe they prefer to be called 'little people.'" - Conor Mckeon Popular Weird Al Songs if He Were Born in 1920... - "Bugle Bugle Bugle Boy of Company Cheese!" - "Twist and Trout!" - "Eat it!" (But he'd record it as a 65 year old.)...
The Earth Times Online Newspaper (Free subscription) | 29/02/2008
NEW YORK, Feb. 28 /PRNewswire/ -- European Rare Disease Day -- The first ever European Rare Disease Day will be launched on Friday 29 February...because it's a rare day that only comes around onc...
Chicago news (Free subscription) | 08/11/2007
A young child's future looks bleak unless he gets a life-saving treatment. He suffers from a rare form of anemia and could die with out a bone marrow transplant from someone who is not a relative. As CBS 2's Rafael Romo reports, the boy and his family are hoping a hero will come forward.
Scotsman.com (Free subscription) | 20/10/2007
A YOUNG girl battling a rare disease is set to benefit from research using new equipment donated to Aberdeen's Robert Gordon University. Lena Forsyth, six, has cystinosis, which causes widespread organ failure. The new equipment will help calm the...
alarm:clock (Free subscription) | 27/08/2007
Netscape alum and serial founder Mike Homer has a rare disease that has now known cure. 300 donor/friends have contributed $6M in the past 3 months to fund a program to save Homer's life (as well as others who suffer from the disease). Homer is just 49 and is a father of 3 who resides in Atherton. In addition to running marketing at Netscape he also helped to launch Opsware, Tivo and Palm. Ten months...
alarm:clock (Free subscription) | 27/08/2007
Netscape alum and serial founder Mike Homer has a rare disease that has now known cure. 300 donor/friends have contributed $6M in the past 3 months to fund a program to save Homer's life (as well as others who suffer from the disease). Homer is just 49 and is a father of 3 who resides in Atherton. In addition to running marketing at Netscape he also helped to launch Opsware, Tivo and Palm. Ten months...
